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Will Gulf War Veterans be tested for XMRV?

The battle over CFS/ME/GWI continues to heat up.

The Wall Street Journal is tracking the issue of XMRV retrovirus research. I told all the gulf war veterans to hold on and I meant it this is going to be a long struggle. The civilians with Chronic Fatigue/ME are in full battle mode. Yes we have at least 2 gulf war illness researchers tracking this issue but no answers yet.

The struggle to replicate the initial findings of a new retrovirus- XMRV- published in 2009 are in full international science realm. Hopefully, the gulf war veterans are vested and keeping track by reading.

Yes we need to have gulf war veterans tested but personally I want the WPI in Nevada to be validated ASAP! No insurance company will phony up to cover cost when this is stuck in research. WE as well as civilians suffering with chronic fatigue syndrome/ME need answers!  The civilians have been involved for 25 years and gulf war veterans 20 years. 

What I can reccommend to gulf war veterans is to keep reading and tune into the webnairs! I will keep you all as updated as I can!  WE can also all keep writing our elected Representatives and Senators to increase CDMRP funding for Gulf War illness and let them know we want answers just like the civilians with CFS.  WE want diagnostic testing and treatment that gets to real answers for us all!   But for now I will post the Wall Street Journal Blog on the issue and thank WSJ’s Amy Dockser Marcus for reporting on the issue and encourage her to keep it up!!:
WSJ Blogs
Health Blog
WSJ’s blog on health and the business of health.
Potential XMRV-Chronic Fatigue Syndrome Link Not Easy to Tease Out

By Amy Dockser Marcus
The controversy surrounding XMRV, a virus that has been linked to chronic-fatigue syndrome and prostate cancer, has been heating up recently.

http://blogs.wsj.com/health/2010/07/15/potential-xmrv-chronic-fatigue-syndrome-link-not-easy-to-tease-out/

Earlier this month, CDC researchers published a paper in Retrovirology that reported the absence of XMRV in either the CFS patients studied or healthy controls. A much-anticipated study by researchers from the FDA and NIH supposedly reached a different conclusion, finding the virus in the blood of CFS patients. It’s expected to run in the journal PNAS but has yet to be published.

So lots of people are waiting for answers — patients anxious to find out whether their disease is linked to XMRV, scientists interested in learning more about what is only the third known human retrovirus and public health officials trying to determine whether XMRV could affect the nation’s blood supply.

And that wait may not be a short one, say experts participating in a webinar today sponsored by the advocacy group CFIDS Association of America. Vincent Racaniello, a professor of microbiology and immunology at Columbia University, said that there’s a lot of work yet to be done in patients in order to answer the key questions surrounding the issue, and the full dimensions of the XMRV story will take time to understand.

“We can learn a lot from history,” he said on the webinar, noting that it took 15 years from the time clusters of AIDS patients were identified to the development of effective therapies. Racaniello doesn’t study XMRV in the lab, but he blogs about the controversy.

In a follow-up chat with the Health Blog, Racaniello said that so far, all the published studies have been done in relatively small numbers of patients — 50 or 100 people.

What’s needed to really get answers, he says, is a 500- or 1,000-person, federally funded study conducted at more than one research site. Ideally participants would be existing CFS patients who’d be available to be interviewed for detailed medical and case histories, and who could give fresh blood samples. And centers would use uniform definitions of CFS and lab methods, he said.

Another webinar participant, Lucinda Bateman, an internist who evaluates CFS patients at her Salt Lake City clinic, says that up until now there’s been “no consistency in the way we diagnose and treat patients” with CFS. Potential treatments for XMRV infection exist, she says, but there are plenty of questions about which are safe and effective — and sorting all that out will take (you guessed it!) — time.

Still, that’s not to say that the scientific process — and the debate — hasn’t been fruitful, she says. Even negative studies help shape the direction of future research, and the differing results of the published studies have led to greater scrutiny of the way CFS is defined.

Interest in CFS is growing in major academic centers and attracting more scientists. And more people are donating money to help fund CFS research, she adds — which eventually should lead to the kinds of trials that Racaniello and others want to see done.

Comments (5 of 33)
4:04 pm July 16, 2010
ixchelkali wrote:
.Professor Vincent Racaniello said that it took 15 years from the time cluster outbreaks of AIDS were identified until effective treatments were found. Cluster outbreaks of Chronic Fatigue Syndrome were identified in Incline Village, Nevada, farming towns in upstate New York and Nevada, and in Charlotte, North Carolina in 1986. Since it’s already been about 25 years, I’d say we’re overdue for some answers and some treatments.

Thanks to Amy Marcus and the WSJ for your continuing coverage of this story. It’s like watching a crime novel plot unfold before your eyes.
.
3:13 pm July 16, 2010
Margaret wrote:
.Thank-you again for your coverage of XMRV and ME/CFS – please contiue.

-Why can’t the FDA-NIH paper, confiiming the WPI publication in Science, be published as is.? All the papers published that refute the WPI findings are quite flawed, and they were published [and critiqued]. Why must a paper confiming the findings be held to a higher standard? Publish it and let the debate begin from there.

-Unchallenged negative studies are creating a media drone of the WPI study being just another dead end. Boring, bye-bye. No more print space or air time for ME/CFS

As a result of the WPI XMRV article in Science:
-The safety of the nations blood supply became a concern and FDA & NIH were tasked by DHHS to study the WPI XMRV findings and report primarily on blood safety issues. We await their findings.
-CDC was tasked with nothing – as far as I know
-Dr. Reeves, head of the ME/CFS Unit. was removed from his position and placed outside CFS- and yet
-Dr. Reeves is a co-author of the published CDC article which refutes the WPI findings – the untasked one ??
-CDC, under, the same Dr. Reeves, published studies that link CFS to child abuse – as though it’s somehow logical that hundreds of people in two small towns, Lyndoville NY [1985] and Incline Village, NV [1984] and other cluster outbreaks all experienced a resurfacing of sexual abuse at the same time, with the very same symptoms, symptom clusters never before seen by their doctors, school children to the elderly. What absurdity was allowed to be studied or published. There was no outcry then, but that study didn’t involve the safety of the blood supply. Left as is, it’s now in doctors’ minds, and ME/CFS is all in the patients’ minds.
-And now, the FDA-NIH study can’t be published, we need more work, to be certian, standardize things.

Hello-lo

-Racaniello saind, “We can learn a lot from history,” — “It took 15 years from the time clusters of AIDS patients were identified to the development of effective therapies”. Where has he been the past decades? ITS TAKEN CDC AND THE SCIENTIFIC COMMUNITY 26 YEARS TO GET NOWHERE WITH THE REAL ILLNESS OF ME/CFS – When do we begin the 15 year countdown? I started in 1984, when I became ill.
-He also listed the – a long and time consuming list of -”things we must do to get meaningful research”. .-as if that was reason not to publish the FDA-NIH study.

The long and twisted history of CDC and the governement’s involvement in ME/CFS is horrendous and should be investigated. The only reason we [those who have ME/CFS] have a shot at attention and progress now, is the issue of the safety of the blood supply. Without that, I doubt FDA and NIH would have been tasked to do a study on the WPI findings. If this opportunity to move ME/CFS into the bio-medical arena is squandered, we’ll all be catagorized as having a whimpy mental health syndrome of “fatigue, pain and general unwellness, not attributed to a medical disease” for decades more, I suspect. -You don’t think so?

While the scientific community may be on the verge of finding biological markers for ME/CFS , the psychiatric community is in the process of revising its Diagnostic and Statistical Manual of Mental Disorders (DSM-V), to include CFS, or CDC’s watered down symptoms of CFS, in a NEW condition called Complex Somatic Symptom Disorder (CSSD). If they prevail, many seriously ill people will be referred to a mental health provider, who will offer 1) Cognitive Behavior Therapy and 2) Graded Exercise. Short, cheap and closed ended. Good for health and disabilities insurance companies and SSI and…. A disaster for the afflicted.

I think it’s all about money. I can’t remember who expressed this, but I’ll put it out there anyway. It’s from the 1980s – “We [the government and nation] just can’t afford another AIDS type epidemic.”

What trumps money? Public panic over the safety of the blood supply? I hope so. It’s now or never.

Thank you again, Margaret
.
2:21 pm July 16, 2010
Carole wrote:
.Thanks again, Ms. Marcus. The OP that stated that this story is a career maker is correct. The first investigative reporter that cracks this case and brings it to the public and government forum in a visible fashion should be famous and rich.

Too bad those of us with CFS or ME are just too sick to do it ourselves.

Might I request that you also write about the KNOWN subset of diseases that ME and CFS cause, such as Postural Orthostatic Tachycardia Syndrome, which CFS experts such as Dr. Charles Lapp and Dr. Nancy Klimas state is found in 50-70% of all CFS and ME patients? This condition, which has RECOGNIZED testing to prove it is real, is life threatening and totally disabling, as people like myself often pass out every time we stand up from this condition.

The CDC was forced to add orthostatic blood pressure conditions as part of the CFS ME definition in recent years. Again, it can easily be PROVEN by tilt table testing and can kill. But most articles and doctors have no idea it is a common CFS ME complication because we NEED MORE PUBLICITY. Notice that this condition is never discussed in any argument or article that relies on CDC information.

Thank you WSJ for letting the public know the score. More articles, please.

And Ms. Marcus, please stay with us as the XMRV issues keeps blowing up in our faces, thanks to the con artists at the CDC. Considering that over a decade ago they illegally moved CFS research money to other purposes, I think con artist is appropriate.
.
2:01 pm July 16, 2010
Carlos Gonzalez wrote:
.I think is really not acceptable that FDA and NIH choose not to further comment on the fact that CDC negative study was published, while their positive study was not. I think they owe us an explanation for any delay on this publication, because it was already approved for its publication, and if there is a conflict with CDC, then they should have hold both of them, but not only the one that is in conflict of their own interest!

Have a look on the whole story: http://ireport.cnn.com/docs/DOC-469366
.
1:41 pm July 16, 2010
john d wrote:
.New Documentary Film being made: “What About ME?” (great way to have an introduction to what the illness is about and the politics behind it for those who don’t know).

YoutubeTrailer: http://www.youtube.com/watch?v=rUBsz4BH6G4

Additional Trailers: http://www.whataboutme.biz/index.html
Blog on the Film: http://whataboutmefilm.blogspot.com/

Here is a speech about it by a patient advocate (her story is also on the website): http://www.ahmf.org/forgetmenot.html
.

Short URL: http://www.veteranstoday.com/?p=40376

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Posted by on Jul 16 2010, With 0 Reads, Filed under Gulf War Illness (GWI), Health. You can follow any responses to this entry through the RSS 2.0. Both comments and pings are currently closed.

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24 Comments for “Will Gulf War Veterans be tested for XMRV?”

  1. Nancy Klimas, MD

    Actually my group has sent identical blinded samples (35 GWI/35 matched controls) to 3 different XMRV expert labs, and we are waiting for the last group to send in the results before unblinding. Dr O’Leary of VACO was quick to respond to this request – I actually sent the samples out in January. But science does take time, and it is better to careful and correct than fast. If there is anything there you can be sure a larger study will follow. Our group is also working with CFS in veterans and non veterans. I have a CFS/GWI clinic in the Miami VAMC so you can be sure that our group remains very motivated to find results that will result in treatments. Keep an eye out for our genomics work, we have some very cool research underway to better explain the mediators of the illness.

  2. There is the possibility that up to 20-50% of Gulf War Syndrome Patients suffer from The CFS subset with Viral Reactivation (HHV-6A, EBV, CMV and/or piggy back co-infections such as Micoplasma and Chlamydia P.) as well As XMRV. I believe all veterans and active duty displaying symptoms should be tested and those that do not present symptoms should be notified to have “the option” of being tested. We all have the “option” to be tested for HIV/AIDS; those at any level of potential risk need to be tested when viable testing methods arrive. We have the capability to start treatment now on the Viruses and co-infections; this is imperative for the patient. http://vlgonvalcyte.wordpress.com/

  3. Well the way I see it is like this folk. I have several of the signs and symptoms related to GWS. At the ripe ol’ age of 35 years of age I began to fall apart both mind and body. I was with 3/23 Marines India Company and had my fair share of the Petro Drink.

    At 41 and taking years of V.A. meds for one thing then another I went back to the basics which is Prayer and the Marine Corps Daily 7. Whether you believe in God is up to you. However, physical fitness is always a viable option.

    I am 5’11 and weighed a whopping 292 lbs. Now I am 235 and dropping and EXERCISE is more important to me than my JOB.

    My JOB is to LIVE!!!!

    I have NO faith in all these B.S. exams and tests. I have about as much faith in them as I do the V.B.A. doing the right thing.

    I have been seing V.A. Docs since 1993 and I have little to NO gripes about my care becuase I feel most V.A. Docs hearts are in the right place. Just MY opinion.

    The V.B.A on the other hand is a different creature.

    The power to change how the V.A. recognizes and compensates GWV is within Rule 1117 and the INTENT of the Congressional Hearings held to get THAT law passed.

    Sometimes we get ALL caught up in the hoopla and the change we seek stares us in the face everyday.

    If you are reading this post then there is still HOPE. Take charge of your life and carry out the plan of the day.

    • Let me ADD outside of cooking my kidneys for years via hypertension each of the symptoms I had related to GWS has started to fade away. I was taking handfuls of pills 2x a day. I wanted my life back and it is slowly and surely coming into sync. You can also. Pick up your pack and follow me!!

  4. I think MANY of you are missing the Main point of discussing XMRV.
    I has and is in the process of being linked to MANY thinks…
    NOT just ME/CFS… also Autism, MCS (another cousin of chem. warfare)
    Atypical MS, IBS, and also possibly linked to Prostrate Cancer and Lymphona.

    I don’t think a Vet being linked to a Retrovirus is the same thing as
    being linked to ME/CFS “only.” WHOLE Different Animal here….

    Also, Kelly, you actually made me LAUGH…
    You said that other org was gonna sue WPI or profiteering?
    That’s acute trick when they are a legit registered NON_Profit 501c3 working
    off a Campus of Nevada in Reno… they are NOT a Private Org. . LOL

    Yes and altho we share different nightmare stories MANY of us also
    share OUR version of PTSD that has our nerves totally shot and our
    adrenals and thyroid are literally destroyed.. and I have tried many therapies
    for PTSD and so far none have helped.. so I just have to PACE myself
    and step away when something gets close to pushing THAT button…

    We’ve been Fighting our own Hell of a War here…
    We Respect ALL of our Vets Immensely…
    But heck YES, Let’s JOIN Forces and
    Getter Done, OK?

    Join us on Facebook and if you can’t say something OPEN
    just contact one of us by internet phone or other means..
    We will do Everything we can to help and educate you..
    We’ve been doing this by ourselves for 25 years now.

    Bless you all *Hugs*

    • Hi Mac,

      You misread my comment. I didn’t say the NCF was going to sue the WPI — if you’ll check again, I just noted that they basically accused the WPI of profiteering. I didn’t say they were correct in doing so.

      You’re correct however that XMRV is beginning to be linked to other chronic illnesses. That doesn’t mean it causes them…but may be another piece of the complex puzzle that will probably be different for each case.

      Thanks for your service.

      Best,

      Kelly

      p.s. What is the name of your Facebook page?

  5. Again Thanks to all for their valuable comments. The point for Gulf War Veterans is to find diagnostic testing, biomarkers, and even more important effective treatments not just psychological based but based on physical problems that negate a quality of life with our families and employment.

  6. I think you guys FAIL ro realize that if Chronic Fatigue Syndrome is in fact diagnosed or linked to a KNOWN Disease this will scrap any chance of COMPENSATION under Rule 1117, for undiagnosed illnesses, unless the Secretary of the V.A. adds XMRV to its list.

    BE CAREFUL WHAT YOU WISH FOR!!!!

    • Hi C.K. :

      Actually, The CDC recognizes the role of CFS, CFIDS (viral reactivation subset of CFS) and nor XMRV (as of June 24, 2010) as a diagnosed and debilitating illness. To quote a prominant CFIDS researcher “CFIDS Patients experience a level of disability equal to that of patients with late-stage AIDS and patients undergoing chemotherapy—and now finally they have a powerful voice on their side.” Considering that these viruses could be magnified and spread in close quarters and war zones; I imagine our Military will take care of its’ own, so to speak. I’ll know more after interviewing top officials and visiting bases along with informative scientific training. I do not know of an article present that can keep the lid on this situation, nor would they want to, as it is possible that every branch, every rank and every child on base is at potential risk until we understand causation and transmission. I trust our Country to “do the right thing.” We need to get the word out first…..http://vlgonvalcyte.wordpress.com/

  7. We have a petition to get the latest XMRV Published Paper released. It is a positive publication which the DHHS is holding back. Please follow the link ans sign it. You can find info at the WhittemorePeterson Institute in Reno, NV’s website as well. We are over 800 for the Petition re: Publication from Dr Alter’s NIH/FDAPaper on XMRV . I am moving the petition link to the top as we can usemore support. Please share the link with others. Let’s Hit the Goal of1000. We can not let up until the paper is public. Keep the pressure on.Thank you All … http://healthcare.change.org/petitions/view/xmrv_allow_science_to_progress

  8. Denise Nichols

    Thanks for all the good replies. I quickly posted my comments and the story, have problems multitasking being an ill gulf war vet nurse, MSN who was in DR Klimas and Dr Barinauck (GW) and anxious to be tested. I believe in the WPI, Cleveland Clinic, NCI study and tracking all the back and forth. I should have said replicated not validated….one of those neurocognitive slips!

    Dr Klimas was going to do test on blood from her GW study but have not heard back from her. She said she would notify each of us personally.

    WE should all combine forces. Although the gulf war veterans have significant multi dimensional exposures. It was a witches brew chems, bio, rads,sand,shots,pb,oil. WE also have nondeployed ill that are being ignored.

    • Our non-profit organization wants to build a specialized health facility to treat people who are sick from chemical or toxin exposures (including Agent Orange, Gulf War illnesses, 9-11, etc.)

      Would anyone be willing to share ideas or resources to help us get this project completed. There is a power point presentation & brochure on our website at http://www.rememberrally.com We are looking at over 100 acres in the Black Hills of South Dakota and will offer traditional & complementary treatments. We want feedback on modalities & design.

      Please email me at promos@iw.net or give me a call.

      Thank you
      Diane Sherwood
      Remember Rally, Inc.
      507-283-4194

  9. Thanks so much for this article. As Kathryn and Keith said above, there are many resources to help keep you up to date on XMRV. If you would like to learn more about the The Neuroendocrineimmune (NEI) Center that will be dedicated to a cure for CFS, Fibromyalgia, Gulf War Syndrome, Chronic Lyme Disease and Multiple Chemical Sensitivities syndrome (NEIDS), you can go to http://www.causes.com/causes/194098?recruiter_id=69446157 or the website at http://neicenter.com/viaamex.htm. Also,

    XMRV Global Action http://www.facebook.com/pages/XMRV-Global-Action/216740433250?ref=nf

    XMRV Press Releases http://www.facebook.com/pages/XMRV-Global-Action/216740433250?ref=nf#!/group.php?gid=112160662164471&ref=ts

    The Whittemore Peterson Institute http://wpinstitute.org/

    Also, the following is a little info on Dr. Nancy Klimas and her work:

    “The Center for Multidisciplinary Research on Chronic Fatigue Syndrome and Gulf War Illness”

    The Center for Multidisciplinary Research on Chronic Fatigue Syndrome (CFS) and Gulf War Illness (GWI), led by Dr. Nancy Klimas, is dedicated to the treatment and study of Chronic Fatigue Syndrome and related neuroendocrineimmune diseases. The center focuses on better understanding of the neuro-immune-endocrine interactions in CFS and GWI, and their role in the pathogenesis of these complex disorders. Through clinical practice and research, the Center is offering health care that affects people’s lives in real and meaningful ways.

    If you would like to help further research in this area you may donate in the following ways:

    1)Print form at: http://www.med.miami.edu/give and specify that donation will go to “Chronic Fatigue Syndrome-Morton Fund.” Donations may be mailed to: University of Miami Miller School of Medicine Office of Medical Development, P.O. Box 016960 (R-100), Miami, FL 33101

    2)Online gifts can be made at: http://www.med.miami.edu/give, under Department select: “Chronic Fatigue Syndrome – Morton Fund”

    Gifts to the Morton Fund directly support CFS research at the Center for Multidisciplinary Research on Chronic Fatigue Syndrome (CFS) and Gulf War Illness (GWI).

    Will be watching your website, thanks!

  10. “… but personally I want the WPI in Nevada to be validated ASAP”

    The WPI was replicated successfully by the Cleveland Clinic and the National Cancer Institute. Why is no one finding them at fault for there collaboration? And were they questioned or debunked for their inital prostate cancer XMRV findings? Of course not.

    Another thing to be aware of.

    There is a HUGE difference between the terms “Validated’ and ‘replicated’ in the scientific community. All the studies done since October, 2009, after the Lombardi study was published in Science, HAVE NOT BEEN REPLICATION STUDIES. They have been “VALIDATION” studies, which is just nonsense. True replciation studies HAVE to take priority. In order to replicate something, you have to follow the assays, methodolgies and cohorts PRECISELY from what was used in the lombardi study. No negative study published did so. Not one. Especially the CDC’s. They halted Dr. Alter’s paper (FDA/NIH) from publication because he DID the correct replication study, nd found in favor of the lombardi studies, that XMRV is associated with CFS.

    Ask yourselves: Is it that the Cleveland Clinic, the NCI, the FDA and the NIH are all wrong, and only the CDC is correct? hardly so.

    • With all due respect, “WPI was NOT replicated successfully by the Cleveland Clinic and the National Cancer Institute”. Sure, the other institutions found XMRV, but they did so in patients with a specifically aggressive type of prostate cancer. This hardly replicates the findings of the WPI with regards to CFS.

      But you’re right: none of the CFS studies have been replication studies. That will probably take another year or so.

  11. Kathryn Stephens

    Please check out these sites:

    oslersweb.com (Hillary Johnson, distinguished author of “Osler’s Web: Inside the Labyrinth ofthe Chronic Fatigue Syndrome Epidemic”), where you will find the complex and criminal nature of the CDC’s coverup of ME/CFS;

    XMRV Press Releases on FB;

    XMRV Global Action on FB;

    cfs-untied.com by Khaly Castle

    wpinstitute.org (Whittemore Peterson Institute)

    ncf-net.org (National Chronic Fatigue and Immune Dysfunction Syndrome Foundation: all volunteers who have been working non-stop, publishing a quarterly called the “Forum”, and have taken a different track towards finding answers to this devastating disease. Very interesting, and possibly related to common everyday food and water.)

    You will find incredible information and support of these sites, and will be informed of the seriousness and danger of having one of these serious illnesses, plus HOPE for further research and treatment. (Please support the researchers who are not being funded by our inept health services in the U.S.!)

    Thank you so much for this article; I’m bookmarking it, sharing it on my FB page, and will be checking in to see if we can give you more info, or vice versa, ok?

    NO TEST=NO TREATMENT=NO HOPE

    • While I appreciate the links you’ve posted Kathryn, it should be pointed out that the National Chronic Fatigue and Immune Dysfunction Foundation (ncf-net) came out strongly against XMRV back in December, going so far as to subtly accuse the WPI of profiteering.

      The NCF folks are indeed an all-volunteer organization who have ‘taken a different track’, typically spending 3/4’s of their newsletter attacking other organizations, treatments (especially natural and/or wholistic), and even other researchers looking into physiological explanations for the syndrome. They seem to excel at holding angry grudges for years, almost decades, while disregarding or dismissing things as simple as vitamin b12 or l-carnitine or coenzyme q10 — all have which have been shown to help some folks with CFIDS. Yes, they haven’t cured anyone, but they have helped many.

      By negating these potentially beneficial supplements, I would argue that they have taken AWAY hope from thousands desperate for at least some improvement.

      And finally, didn’t the NCF announce back in 2005 that they had found “THE” cure for CFIDS?

      Whatever happened to that?

  12. It would be of IMMENSE benefit if Gulf War vets were publicly associated with the search for the cause and cure for the wide range of neuro-endocrine diseases and most particularly publicly seen to be following XMRV research.

    Unfortunately conditions like CFS, Fibromyalgia, MCS etc are too easily blamed on the patient (hysterical women, bad genes, malingering, psychosomatic etc) and dismissed as trivial.

    Would the media be so quick to label Vets as ‘hysterical’?

    • Mr. Henry,

      The “media” has not labeled anyone as “hysterical.” News reports are not opinion pieces. Journalists like Ms. Marcus interview people from many points of view and report what the source said – not what the reporter said. This is their job regardless of the topic and is called attribution.

      On the other hand psychiatrists and uninformed English professors from Princeton University, however have used the label “hysteria” which refers back to a theory of neurasthenia. They thought it was caused by newspapers and education of women. Freud ultimately rejected the theory in the early part of the last century.

      And yes, at least one psychiatrist in a paper about GWS expressed surprise and delight that this was the first documented “hysteria” in males.

      Science has come a long way since the 1800s when viruses and toxins were unknown to the medical establishment.

      • Actually, I disagree with you on this point in the respect that the media has labeled CFS Patients and some GWS patients as “Hysterical”. They’ve promoted cartoons such as “The Yuppie Flu” and the Medical, Societal and familial realms have discounted patients both Military and Civilian. Multiple Sclerosis was once called “female Hysteria”, By Freud I believe. Leukemia was once considered a “hysteria”. AIDS was once labeled :gay Hysteria”. I think it is fair to say that any newly discovered disease that affects the Central Nervous System is tagged as a “Syndrome” in the Medical Field and tended to be pushed as a Psychological Disease. I believe we are more in the Dark Ages than you know on modern illnesses with unknown etiology. It is human nature to disount the “scientifically unknown”. http://vlgonvalcyte.wordpress.com/

  13. For those sufferers who are not so mobile such as myself, I have discovered that there are many CFS/ME/XMRV support groups that we can join on Facebook. I find these very helpful for up-to-date information and advice on all aspects of this illness.

  14. Thank you for the wonderful article Denise.
    The whole CDC thing just blows my mind. WHAT is going on there ? What are they trying to hide ? Millions of us and we are all so sick,so much pain,lost friends,family,income,LIVES.And we are Invisible…………

  15. There is an organization called P.A.N.D.O.R.A. that is trying to build a center in New Jersey to study and treat CFS/ME, Fibro, GWI and chronic Lyme and could really use the GWS communitie support. They are entered in the Pepsi Refresh Express Contest and GW ilness supports votes in the contest would help them speed up building the center. Please give them a vote.
    I have CFS and and this was a great article. I believe the CDC is hoping the whole XMRV issue will go away but it looks like it may be causing many cases of CFS/ME. I think GWS patients should all be tested ASAP.It could be causing your illness too.

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  20. RT Outs Amanpour, the “Cow of Propaganda
  1. Captain Sensible: Oh, and the 7 cops who planted heroin on me ? There is NO RECORD OF THAT AREST OR NAYTHING ELSE TO DO WITH IT - NO STATEMENTS, NOTHING ! ...
  2. Charles Fasola: Gennady & lidya, you are both nazi filth. As are the regime you support. Your inhumane and barbaric allies ehich you support should be dealt with in the ...
  3. PallMall: Good video. Here is Sever Plocker's original article ******http //www.ynetnews.com/articles/0,7340,L-3342999,00.html Honest man.
  4. Captain Sensible: Cont'd........ When i shouted "he's committed perjury, and i just proved it", the magistarte told me to SHAT AP, and gave me a £300 fine, and 7 points on my ...
  5. Gerry Kraut: Furthermore, the European Court of Justice (Cabalstice)) has already informed the Chip Commission that it will not accept any complaints from either individuals or interest groups, as it does not ...

Veterans Today Poll

For over 60 years, US Taxpayers have been funding Israel, Palestine and Middle East. Are you happy with return on investment or would you prefer those monies be invested at home instead?

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