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A Vision of Hope for CFS: Why Not Gulf War Veterans?
Exciting Days for CFS Patients who keep pushing science to answer their questions! Lessons to be learned by Gulf War Veterans who are ill!
WE have 1-4 million in the US ill with CFS, more with FM, and 1 in four(at least) gulf war veterans ill from the first gulf war, and we have nondeployed gulf war veterans ill also. So I declare a war is waging now on our health that includes veterans and civilians. So we are Americans at War! WE also have an international population that is also affected! This is affecting the economy involving Billions of Dollars in loss of productive lives! It also involves a great number of people unemployed and dependent on VA or Social Security Disability or other means. It is an issue tht deserves this country’s attention NOW.
There is a news interview that you should listen to:
The dedication by a family that wanted answers led to the funding of the Whittmore Peterson Institute. Answers can be found if you have people with means and researchers that hear the patients!
It has been twenty years for Gulf War Veterans and has been longer for CFS patients. The need for these type of centers is highlighted. An integrated approach with patient care and research that is triggered by the patients, and then taking findings back to patients to make a difference in their lives! The VA has Centers of Excellence on MS and various conditions why not have VA combine with Civilians at Whittmore Peterson in Nevada for gulf war veterans?
Why not Center of Excellence on IBS with Dr Chia (Calif), Dr Tujeja(SLC VA), Dr Alvin Imaeda And Dr Fred Gorelick(VA Med Center West Haven Ct) all collaborating?
Why not Center of Excellence for FM and include Dr Patrick Wood (Washington State)?
Why not Centers of Excellence for CFS/GWI Dr Klimas Miami, Dr Bateman (Salt Lake City) and Dr Barinauk(Georgetown University)?
Why not Centers of Excellence re Neurological Testing (UTSWM in collaboration with Dallas VA) and other in California?
I can have a Vision and I can pray and hope that Civilians and VA can come together to make a difference!
Short URL: http://www.veteranstoday.com/?p=49946
Posted by Denise Nichols on Sep 17 2010, With 0 Reads, Filed under Gulf War Illness (GWI), Health, Vet News. You can follow any responses to this entry through the RSS 2.0. Both comments and pings are currently closed.
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If you want to let the country (world) know what’s happening, and the danger they are in, join now:
http://www.causes.com/causes/51136
We will be placing an ad in the Washington Post very, very soon…join us, help us decide the content (patients vote on all proposals), please donate if you can. We have over 1000 members in less than six weeks, over $4775 towards the $8K needed…you can vote on the Logo we’ll be using, also, through Sunday, 9/20/2010! JOIN ME/CFS Worldwide Patient Alliance which will include CFS/ME,FM,GWI,Autism, Atypical MS among others! Help us wage this war, please. Thanks.
Please join NOW: this week will be vital to you, your families and the country! We are getting it all together right NOW, with a new website, new funding, and other .orgs joining in the blitz on governments of the world that think they can ignore us. They will not ignore us after or Ad appears in the Washington Post, mark my words.
Denise’s reporting has let you know the news: XMRV and 4 other related retroviruses have been found, and the Whittemore Peterson Institute are finding them in GWI, FM, CFS, Autism, atypical MS and other neuro-endocrine-immune system diseases/syndromes.
Join FB if only for this Cause:
http://www.causes.com/causes/511536
the ME/CFS Worldwide Patient Alliance (MCWPA)!
You will never do anything that will broadcast your concerns to the country and the world as this Ad is going to do!
May you reap all the blessings the Cause wants to bring to you….
Thank you for staying on this critical topic! I do believe the real numbers of sick with ME/CFS, FM, GWS is much higher than the estimates show. We do not have the doctors to diagnose, many do not have money or insurance to get to a decent doctor, the public information on these dreadful diseases is just NOT out there.
But it will be soon. As Kathryn has written there is a massive worldwide media campaign now that has over 1,080 members and over $5,000.00 in donations in about a 7 week period. Now that is outstanding and shows that people KNOW we must have a very public declaration and that is what this very professionally done AD in the Washington Post will do. Note that all work done by the “ME/CFS Worldwide Patient Alliance” is being done by ME/CFS/FM sick who were top notch professionals before they got sick. So, every single cent is going towards getting that heavy-hitting AD in the Washington Post.
Again, as Kathryn has stated, PLEASE hit the website http://www.causes.com/causes/511536 , have a look, join, donate if possible, AND be a part of this critical campaign. We need YOUR ideas!!! We had a membership=wide vote on several logos for this campaign and over 30% of our members voted! Our members are actively involved and know this is what must be done NOW. NOW, before the window of opportunity closes on us and we remain in bed and in the house stuck for another three decades.
Well done!! Thank you Ms. Nichols! Thank you Kathryn!!!!
ALL: PLEASE HIT THE SITE ABOVE AND SEE WHAT IS GOING ON RIGHT NOW!!!!